Friday, August 10, 2012

Stargardt's and Me


So Stargardt's Disease and I have been together for 4 months now, we were formally introduced on April 02, 2012 and my life has never been the same. I had some brief glimpses of Stargardt's before we met with difficulty reading small print and recognizing people from 20 feet away.
Having this disease for me is like beginning a new relationship you spend time learning about your situation and you start to make room for this new experience in your life. The only difference is when my relationship with Stargardt's goes sour I can't simply break things off. I can't say "We just don't see eye to eye." (lame attempt at a blind joke) So I'm in this for the long haul.
Last week I finally got around to writing a post that's a fact sheet about Stargarst's Disease which you can read here. So I figured the next post I wrote should be about my relationship with the disease. Just doing research and talking to others everyone has a different experience with this affliction.

So this is what's going on with me...and Stargardt's:


  • My visual acuity is 20/200 in my left eye and 20/100 in the right. This would make me legally blind.
  • I have a faint central scotoma or a blind spot. It comes and goes.
  • I do have to sit fairly close to monitors and TVs to see. Right now I'm typing this on a 23-inch monitor at 2x magnification sitting a foot away.
  • I do have photophobia or sensitivity to bright lights. Out side I do where sunglasses and indoors I try to sit in dim light.
  • I have light adaptation issues. Which means it takes longer for my eyes to adjust from bright environments to dark.
  • I don't need a cane yet or a guide dog.
I think this is nice breakdown of what my "relationship" is like. I will do another update around October since that's when my next doctor's appointment is.
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