Tuesday, September 23, 2014

Video: Hope for a Cure & Living Life

quote-just-because-the-past-didn't-turn-out-like-you-wanted-it-to-doesn't-mean-your-future-can't-be-better-than-you-ever-imagine
"Just because the past didn't turn out like you wanted it to,
doesn't mean your future can't be better than you ever imagined.

Slowly losing my central vision to Stargardt's Disease is something you can imagine I'm not exactly thrilled about but its the reality I live in. I created this blog to document my experience and also to learn more about living with visual impairment.

Monday, September 1, 2014

Video: Poked and Prodded

Just like everyone should do I get my annual physicals once a year (general, eyes, dental, ect.) This year I scheduled my appointments all around the same time and it seems like they all have given rise to more appointments. 

Tuesday, August 26, 2014

Video: My Last 2 Videos


2014 so far is a low productivity year for this blog. I've been venturing out on other territories on this grand social media sphere but rarely do I touch down on home base (this blog). I've started other projects some are winding down so I'll have a bit more time. 

Friday, July 25, 2014

Video: The Prospect of Bring a Mom

a-newborn-baby-hand-clasped-around-adult-fingers
I snapped a photo of my niece holding on to my fingers with her adorable little hand.
Its Friday so that means a new video post. Every Thursday a new video on my Essceejulies channel is published. Last week that wasn't the case because of several factors One of the reasons was two Mondays ago (July 14) I became a first-time aunt.

Friday, July 11, 2014

Video - Being Aware of Other Senses | Essceejulies

Thanks to advances in technology over recent decades and the growth of social media we are sharing more information than ever. Most of this information is visually based. This often creates circumstances where we're increasingly not in "touch" with our other senses.

Tuesday, July 8, 2014

Video - Reasons To Smile | Essceejulies

In last week's video I talked about why I had reasons to smile over the past few weeks. This includes family milestones, visiting my eye doctor and finally meeting with my state's commission for the blind to help me to have

Friday, June 27, 2014

No video this week & other things.

I didn't post a video this week on my youtube channel. Its been a busy week with birthdays, graduations and meetings and I didn't feel it necessary to make a 30 second video just to say that. 

One of the meetings I had this week was one it seems like I've been waiting a year to have. If you follow me on twitter (@Essceejulies) I posted the below vague tweet:
Things are moving forward to helping me become more independent. I'll talk more about it in the following week's and months but I'm really excited!

Oh and also I wanted to remind you that if you're really into Google+ I created two Stargardt's groups over there. One is a public awareness group and the other is a private support group. I encourage you to join either group as a moderator or contributor.


Awareness Group: 

https://plus.google.com/communities/106991972989952787499

Support Group:
https://plus.google.com/communities/100039691993030726093



Friday, June 20, 2014

My Latest Video: Reconciling Identity


I finally solved my audio issues with my videos.... but now it takes longer to edit them. This week's video was some what "inspired" by my latest TED Talk Tuesday post about Inspiration Porn.