Tuesday, October 28, 2014
Tuesday, September 30, 2014
Before I go into more detail about clinical trials involving Stargardt's I made the above video giving an overview of clinical trials. Since Stargardt's is classified as a rare disease its quite profound that there are so many promising treatments in development. The three companies that will be featured in subsequent videos are:
- Alkeus Pharmaceuticals
- Oxford Biomedica
- Advanced Cell Technology
Tuesday, September 23, 2014
"Just because the past didn't turn out like you wanted it to,
doesn't mean your future can't be better than you ever imagined.
Slowly losing my central vision to Stargardt's Disease is something you can imagine I'm not exactly thrilled about but its the reality I live in. I created this blog to document my experience and also to learn more about living with visual impairment.
Monday, September 1, 2014
Just like everyone should do I get my annual physicals once a year (general, eyes, dental, ect.) This year I scheduled my appointments all around the same time and it seems like they all have given rise to more appointments.
Tuesday, August 26, 2014
2014 so far is a low productivity year for this blog. I've been venturing out on other territories on this grand social media sphere but rarely do I touch down on home base (this blog). I've started other projects some are winding down so I'll have a bit more time.
Friday, July 25, 2014
|I snapped a photo of my niece holding on to my fingers with her adorable little hand.|
Friday, July 11, 2014
Thanks to advances in technology over recent decades and the growth of social media we are sharing more information than ever. Most of this information is visually based. This often creates circumstances where we're increasingly not in "touch" with our other senses.
Tuesday, July 8, 2014
In last week's video I talked about why I had reasons to smile over the past few weeks. This includes family milestones, visiting my eye doctor and finally meeting with my state's commission for the blind to help me to have