Tuesday, April 15, 2014

#TEDTalkTuesday - Sam Bems' Philosophy for a Happy Life

Its been a few Tuesdays since  a TED Talk post and today’s featured presentation is a great one to start with. I know that we’re almost a third of the way through 2014 but is it too late to say “Happy New Year!”?

The first time I heard about Sam Berns was actually in a previous TED Talk featuring NIH Director Dr. Francis Collins. Dr. Collins interviewed Sam about living with the extremely rare rapid aging disease Progeria. Back in October (2013) Sam was able to be a presenter at the TEDx Mid-Atlantic conference. In that talk Sam discussed his personal philosophy on happiness. Unfortunately earlier this year in January Sam passed away at the age of 17 due to complications of Progeria. In his brief 17 years of life Sam came up with a simple yet inspirational philosophy on how to find contentment. 



Wednesday, April 2, 2014

Two-Year Stargardt's Anniversary and I'm Back

Well hello, its been a while since I blogged. I took a break but I'm back. Today happens to be a special day for me, its been two years since I was diagnosed with Stargardt's. It really doesn't feel like its been two years. In the video below I talk a little more about it.


Wednesday, January 1, 2014

My Vision



I just wanted to end 2013 talking about a topic that should of been one of my first vlog post and that's my visual impairment. If you are a regular reader of my blog this isn't news but I haven't discussed it much on my youtube channel. I've learned a lot over the past 20 months since being diagnosed with Stargardt's Disease.

Others With Stargardt's Playlist:

What I See Playlist:

Watch Previous Video here: http://youtu.be/jWdL_sXg3fs

Tuesday, December 3, 2013

#TEDTalkTuesday Chris Downey: Design with the blind in mind

Haven't done a TED Talk Tuesday in a while but I'm back with a good one. Today (December 3rd) is International Day of Persons with Disabilities. This year's theme is "Break Barriers, Open Doors: for an inclusive society and development for all”. I found this great talk that I feel embodies this year's theme perfectly.

Tuesday, November 26, 2013

Just In Time For the Holidays: Braille Greeting Cards

The above picture is an assortment of Braille Tactile Holiday Greeting cards.

So the other day one of my Stargardt's twitter friends Yvonne Felix tweeted me the above picture of greeting cards. These are not just any greeting cards they are Braille tactile cards. Yvonne was tired of getting cards that she couldn't see so since she's an artist she decided to make her own. This is such a great idea. The proceeds from the cards will go to support the non-profit Resight Inclusive Arts.

The cards are $3.00 or $25.00 for 40 cards you can purchase the cards here.

If you liked this post you maybe interested in reading: 
Artist Yvonne Felix Thriving With Stargardt's


Sunday, November 24, 2013

Saying Hi and Stargardts Links

I'm saying hello via the below video I made but I just realized that some countries don't allow video playback. Basically what I'm saying is I know that on this blog I can be inconsistent when I post and I've drifted away from telling my story dealing with vision loss. Below the video I provided links to websites, blogs, a video playlist and more to help you connect with others who have Stargardt's. If you know of some information I missed feel free to contact me. If you are able to watch my video I made it closed captioned so you can understand me better.


Tuesday, October 29, 2013

#TEDTalkTuesday - Vampires: Folklore, fantasy and fact - Michael Molina

I'm switching it up a bit with my TED Talk Tuesday post and featuring a video from the education branch of the TED organization. This year I've been more enthusiastic about celebrating Halloween since last year being unable to due so because of Hurricane Sandy.

Tuesday, October 15, 2013

TEDTalkTuesday - Julian Baggini: Being Multifokal

Finally back with a new TED Talk. The title of this blog is The Ever Changing Perspective of Essceejulies. The word in that title that jumps out should be perspective. The use of the word perspective isn't just used to describe the physical sense of sight but how perspective shapes how we see with our inner-vision. Perspective molds so much of how we navigate through life. It shapes who we think we are and how we interact with others.