Friday, February 27, 2015

Video: Its 2015

The last time I posted on this blog it was 2014 and now it's well 2015. In the video below I give an update on what I've been doing and I also have a special little guest with me (towards the end). 

Monday, November 10, 2014

Clinical Trials: Ocata Therapeutics (ACT) - Stem Cell Therapy

Most rare diseases such as Stargardt's presently have no treatments available. So its very exciting that there are a few clinical trials taking place investigating potential treatments. 

Tuesday, October 28, 2014

#TEDTalkTuesday: What are stem cells? - Craig A. Kohn

In my last post I talked about clinical trials, more specifically clinical trials that are currently being done in regards to Stargardt's.

Tuesday, September 30, 2014

Video: Clinical Trials

Before I go into more detail about clinical trials involving Stargardt's I made the below video giving an overview of clinical trials.

Tuesday, September 23, 2014

Video: Hope for a Cure & Living Life

"Just because the past didn't turn out like you wanted it to,
doesn't mean your future can't be better than you ever imagined.
Slowly losing my central vision to Stargardt's Disease is something you can imagine I'm not exactly thrilled about but its the reality I live in. I created this blog to document my experience and also to learn more about living with visual impairment.

Tuesday, August 26, 2014

Video: My Last 2 Videos

2014 so far is a low productivity year for this blog. I've been venturing out on other territories on this grand social media sphere but rarely do I touch down on home base (this blog). I've started other projects some are winding down so I'll have a bit more time. 

Friday, July 25, 2014

Video: The Prospect of Bring a Mom

I snapped a photo of my niece holding on to my fingers with her adorable little hand.
Its Friday so that means a new video post. Every Thursday a new video on my Essceejulies channel is published. Last week that wasn't the case because of several factors One of the reasons was two Mondays ago (July 14) I became a first-time aunt.

Friday, July 11, 2014

Video - Being Aware of Other Senses | Essceejulies

Thanks to advances in technology over recent decades and the growth of social media we are sharing more information than ever. Most of this information is visually based. This often creates circumstances where we're increasingly not in "touch" with our other senses.