Wednesday, October 24, 2012

Toddler and Her White Cane

I came across this video a few weeks after my diagnosis. I think this video of a toddler learning to use her white cane to navigate her surroundings is awesome. If she can do it then why wouldn't I when the time comes. Most of the comments on the video are for the most part positive but a few were filled with pity. The video shouldn't provoke feelings of pity, this little girl is being given independence. It would be pitiful if the video played only to the fact she couldn't see, but it doesn't. Just because someone is impaired in one area in their life doesn't mean they aren't capable in others.

Wednesday, October 3, 2012

Stargardt Stories

"It's not the strongest of the species that survive, nor the most intelligent, but the one most responsive to change. - Charles Darwin.
Image created by Mia Pallas found on 
When I was first diagnosed with Stargardt's I stumbled upon the site Under the tab Living With Stargardt's they had compiled stories of various people with the disease from all around the world. It was so comforting to read about people's experiences having similar fears yet still pulling through. It brought into focus that I'm not alone with this affliction. I'm not exactly sure if they are still excepting stories but you can contact them at if you yourself or a loved one wants to share your experience.

UPDATE: If you would like to read more Stargardt Disease related blogs I added a a new page Stargardt Blogroll which can be found on the header bar above or to the sidebar to the right. Its that thin vertical line to the right of the page. If you put your cursor on it magical things happen. Ok, well maybe not magical things but it will give other links to interesting pages. Feel free to recommend any other blogs in the comments.