About


This is my little "About Me" blurb.

My profile picture. (2013)
So who is eSsCeeJulies/S.C. Julies? A figment of your imagination that is depicted in a profile picture next to this description. And one who has been engaged in metabolic processes since the mid 1980s
Ok so maybe the figment of your imagination is stretching it a bit. Oh and no eSsCeeJulies/S.C. Julies isn't my real name but its close. My name is Sharina Julien actually its Sharina C. Julien that's where "EssCeeJulies" comes from. But seriously who would really lie about going blind? Ok I know that people do some despicable things to get attention but I wish I was lying.

So yes I am slowly losing my central vision (to be specific) to a rare form of Macular Degeneration called Stargardt's Disease. I was diagnosed on April 02, 2012 at the age of 27. This diagnosis has changed my perspective on several things. I actually registered this blog back in January a week after my birthday. I didn't write anything on the blog until July 2012 because I was having a difficult time focusing on my blog's topic. I named the blog The Ever Changing Perspective of Essceejulies  because it used to be the title of my Tumblr blog. Two, I have so many interests and three its a recognition that we are dynamic beings not static. Then this happened. Being diagnosed with this disease oddly enough gave me a focus and a renewed sense of myself. Its made me stop stressing the trivial things and move forward with things I've always wanted to do.


I will admit my initial reaction was fear. Fear of time running out, fear of my future and regrets. But with educating myself about the nature of the disease my fear gets smaller and smaller. I've also realize that my biggest obstacle isn't so much this disease but myself. I have a tendency at times to fall prey to pessimism and doubt. But I think I'm ready to take this new circumstance on.

My goal with this blog is not so much to be an inspiration or seek pity from other people. Its myself sharing my present life experience that is heavily influenced by this affliction. This blog will be "blind-centric" for the most part. If you would like to get to know more about me my social links are down below. I have some more things planned for this blog and we'll "see" how that comes along. If you do have any inquiries or just want to say hi click on the contact tab for further information. I'll attempt to get at least one blog post up a week. 

Connect with me:

Twitter: http://www.twitter.com/essceejulies
Tumblr: http://essceejulies.tumblr.com
Google+: https://plus.google.com/u/0/106132924...
Pinterest: http://www.pinterest.com/essceejulies/
Instagram: @essceejulies
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