Friday, June 27, 2014

No video this week & other things.

I didn't post a video this week on my youtube channel. Its been a busy week with birthdays, graduations and meetings and I didn't feel it necessary to make a 30 second video just to say that. 

One of the meetings I had this week was one it seems like I've been waiting a year to have. If you follow me on twitter (@Essceejulies) I posted the below vague tweet:
Things are moving forward to helping me become more independent. I'll talk more about it in the following week's and months but I'm really excited!

Oh and also I wanted to remind you that if you're really into Google+ I created two Stargardt's groups over there. One is a public awareness group and the other is a private support group. I encourage you to join either group as a moderator or contributor.

Awareness Group:

Support Group:

Friday, June 20, 2014

My Latest Video: Reconciling Identity

I finally solved my audio issues with my videos.... but now it takes longer to edit them. This week's video was some what "inspired" by my latest TED Talk Tuesday post about Inspiration Porn.

Tuesday, June 17, 2014

#TEDTalkTuesday: Inspiration Porn and the Objectification of Disability: Stella Young

Its a Tuesday so it must be time for another TED Talk. Now, don't be alarmed (or excited) by the word 'porn" in the title of this post. This post is definitely not about sex.

Monday, June 16, 2014

Rolling out My New Channel

The roll out of my new youtube channel Essceejulies has been a little rough. A couple of my videos were having audio problems so I had to delete them and then repost them. I can tell you it is as frustrating as it sounds. I also have to admit that I am not the best self-promoter so things have been a bit slow. But

Tuesday, May 27, 2014

New Youtube Channel | Essceejulies

Oh wow a blog post that isn't a TED Talk. Could this mean this blog will start being a blog again? One way I'm attempting to get back into the groove is by incorporating my interest in making videos.

Tuesday, May 13, 2014

Tuesday, April 15, 2014

#TEDTalkTuesday - Sam Bems' Philosophy for a Happy Life

Its been a few Tuesdays since  a TED Talk post and today’s featured presentation is a great one to start with. I know that we’re almost a third of the way through 2014 but is it too late to say “Happy New Year!”?

Wednesday, April 2, 2014

Two-Year Stargardt's Anniversary and I'm Back

Well hello, its been a while since I blogged. I took a break but I'm back. Today happens to be a special day for me, its been two years since I was diagnosed with Stargardt's. It really doesn't feel like its been two years. In the video below I talk a little more about it.